Giving your chronically ill child a VOICE
When my son voices his feelings about being chronically ill, the impact is visible. But how much is healthy vs too much? How can we make...
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Your Chronically Ill Child’s Journey To Acceptance
How my chronically ill son has reached acceptance on his condition. What "acceptance" does and doesn't mean and making the most of each day.
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6 Steps to Creating a New Vision for Your Child’s Future… when life changes
Being chronically ill means my son's vision for his life has to change. Here are 6 steps we are taking to address goals, purpose & planning.
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Testing and Trialing New Approaches to Heal Your Chronically Ill Child
As a parent of a chronically ill child, you need to determine what to trial & the order to trial -- new meds, supplements, therapies, etc.
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Attention, Parents - Listen to Your Gut
“What does listening to your gut mean? In my chronically ill son’s case, there were 8 early signs that I observed, documented and acted on.
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12 Things…… that Parents of Chronically Ill Children Do Differently
Our life is different. So, here's my list of 12 things that I do differently than other parents who don’t have a chronically ill child.
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Meeting Your Chronically Ill Child’s Needs Takes TEAMWORK
How do I develop a strong sense of partnership or teamwork in order to create the best environment possible for my chronically ill child?
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Choices: Which Door to Pick?
Traditional medicine. Integrative medicine. Functional medicine. How do you know which to research and try when there are so many options?
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Parenting a Child with Medical Anxiety - 5 Helpful Tips
Chronically ill children experience Medical PTSD due to endless doctor visits, labs, procedures & meds combined with a sense of no end.
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The Ultimate Goal
I sometimes wonder why being on a “normal path” is so painstakingly important to some? Before having my son, I had the same thought...
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Just Start Somewhere -- Strengthening Your Child’s Chronically Ill Body
When it comes to exercise, children with chronic illness are at a disadvantage and have valid reasons for not wanting to start or even try.
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4 Chronic Illness Resolutions for Parents in 2021….They May Work for You Too
Setting New Year’s resolutions often have a reverse effect in how they sometimes make us feel less than okay or inadequate. What I often see
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Planning an Enjoyable Holiday for All … Including Your Chronically Ill Child
Holidays with a chronically ill child can be challenging, but your child and family CAN experience holiday joys with the right planning.
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Creating a Fulfilling Life for Your Chronically Ill Child
Many thanks to Toni Bernhard and "Psychology Today" for featuring my guest post. This post is about: thinking in terms of “bite-size moments” and how they can help your child live a normal life. This approach has made a big difference for our family! I hope there are some takeaways that can help you on your journey as well.
Here's a direct link to the article: https://www.psychologytoday.com/us/blog/turning-straw-gold/202011/creating-fulfilling-life-your-chronically-ill-chi
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Doctor Appointments - 9 Tips for Success
To get the most of each doctor's appointment, treat it like a two-way interview, using these 9 tips for success.
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Is It Okay to Say: "Enough?”
How many roads should we try? I've had to face and answer a looming question that repeated in my head: Is it okay to say, "enough" for now?
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Doctor Appointments… How a “Medical Resume” Can Help
To ensure effective and productive doctor appointments, I developed a "medical resume," which ensures we get all our questions answered.
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Parenting When There Are … No Clear Answers
Through the years, I have learned 3 important principles to use in parenting a chronically ill child, where there are no clear answers.
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When You're a Medical Outlier
How do you explain to the outside world that your son has multiple diagnoses that don’t fit neatly together... as a medical outlier?
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